Resources and Mentoring
Our staff are experienced service navigators that use top-notch information and referral services to find you the help you need. We can address questions about health plans, finding clinical trials, Medicaid/Medicare services and more. No request is too simple or too complex.
Our staff are experienced service navigators that use top-notch information and referral services to find you the help you need. We can address questions about health plans, finding clinical trials, Medicaid/Medicare services and more. No request is too simple or too complex.
Equipment Needs
A life with Duchenne is constantly changing. If you need assistance obtaining equipment that is not covered by your insurance, we are here to help.
A life with Duchenne is constantly changing. If you need assistance obtaining equipment that is not covered by your insurance, we are here to help.
Home Modifications
Whether it’s home modifications, help with resources or financial assistance making your home accessible, please reach out to us.
Whether it’s home modifications, help with resources or financial assistance making your home accessible, please reach out to us.
Travel Assistance
All Duchenne patients should have access to good care. If you need help with travel expenses to get to a Duchenne clinic or doctor appointments, please reach out to us.
All Duchenne patients should have access to good care. If you need help with travel expenses to get to a Duchenne clinic or doctor appointments, please reach out to us.
Accessible Vehicles and Modifications
Do you need assistance purchasing an accessible vehicle or modifying a van? Please reach out for help with resources or to request financial assistance.
Do you need assistance purchasing an accessible vehicle or modifying a van? Please reach out for help with resources or to request financial assistance.
Government Programs
Do you need help navigating Medicaid waivers, SSI, Medicare, housing programs, etc? We’re happy to help.
Do you need help navigating Medicaid waivers, SSI, Medicare, housing programs, etc? We’re happy to help.
Insurance Questions/Denials
Whether you have a private or public health plan, our staff can work with you to obtain coverage or appeal a denial.
Whether you have a private or public health plan, our staff can work with you to obtain coverage or appeal a denial.
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Resources
Duchenne can be a long and complex journey. Caregivers find themselves wearing multiple hats – parent, advocate, educator, scientist, fundraiser, and therapist - just to name a few. Here, we provide you a tool to search for national, state, regional, private and public programs that can help you with whatever you need. Start your search by entering your zip code. |
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