"The Duchenne Family Assistance Program has greatly impacted our family by providing the airfare for my daughter, grandson and myself to go to his neuromuscular clinic in Columbus this past March. We were so grateful to have that covered this year, so that we could really focus on his clinic visit and not have to worry about that piece of it. With the very high deductible that my daughter's insurance carries and all of the other stressors in traveling with a 5-year old who also has some cognitive issues, we feel so blessed. Working with Team Joseph was very easy and Dorene was so compassionate and caring. Thank you!"
"If you are overwhelmed or not sure how to proceed with the Medicaid waiver services, consider reaching out to the Duchenne Family Assistance Program about it. It made a world of difference sorting out all the confusion in how to apply for the services that may be available to your child."
"When we heard about the PPMD annual conference in Orlando, we thought it sounded like an amazing, informational experience. However, being recently diagnosed with DMD, we were also really in the throws of some financial burdens....from the time taken off to grieve (a month for Joaquin's mom) and the onslaught of the first round of medical bills in addition to a midnight ambulance ride and an unforeseen surgery that Joaquin needed, we had to cut some things out so that we would feel comfortable financially. For us, this meant passing on the conference.
One day we were talking to a fellow DMD mom about what a wonderful thing PPMD was doing putting on the conference every year and she said we needed to go. After hearing our fears she put us in touch with Team Joseph and it seems like our fairy godmother came out of nowhere and now we are going! What a gift it is to not only connect us to families in our exact shoes but to give our family the opportunity to gain knowledge that will help our child live his best possible life...one step closer to a cure!"